Such goodness you expect. You never imagine, however a rare disease in your perfectly ever after. Not to mention dealing with daily pain on top of an already hard diagnosis. When storms like these strike, if you are not on solid footing - I just can't imagine what that would be like. How one could stand strong- because I cannot on my own. Though our world is being touched by Axenfeld Rieger Syndrome, this disease doesn't shake us. It does not overtake. It does not define. It does not control. It does frighten at times-I have to be honest. It keeps me up some nights. On specially bad days, it drains. It overwhelms. It hurts to see your baby go through hardships. But by the grace of God that is not the whole story. For we know in whom we have placed our trust. And he is good- we trust that. In good times. In hard times. We know we are blessed.
this is not our home
'Cause what if Your blessings come through raindrops
What if Your healing comes through tears
What if a thousand sleepless nights
Are what it takes to know You’re near
What if my greatest disappointments
Or the achings of this life